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Username: Элеонора Романова

Country: Russian Federation

Region: Республика Башкортостан

Town: Ufa

The criminal case against the Ministry of Health of Bashkiria “on the fact of the inaction of officials of the state authorities of the Republic of Belarus in providing children with disabilities with the drug Elapraza, which was opened in 2017, last...
24.11.2020 г.

"The trial of a new drug on children with mucopolysaccharidosis was carried out without the knowledge of their parents." Eleonora Romanova, President of the regional charitable public organization "Society of Disabled People Suffering...
25.08.2020 г.

In 2006, parents of children with mucopolysaccharidosis (Hunter's syndrome) were informed that the drug Elapraza had appeared in the United States, which could help fight the disease. This is an artificial enzyme, the deficiency or absence of whi...
04.08.2020 г.