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Username: Элеонора Романова

Country: Russian Federation

Region: Республика Башкортостан

Town: Ufa

"The trial of a new drug on children with mucopolysaccharidosis was carried out without the knowledge of their parents." Eleonora Romanova, President of the regional charitable public organization "Society of Disabled People Suffering...
25.08.2020 г.

In 2006, parents of children with mucopolysaccharidosis (Hunter's syndrome) were informed that the drug Elapraza had appeared in the United States, which could help fight the disease. This is an artificial enzyme, the deficiency or absence of whi...
04.08.2020 г.